Transcript: Living with Cerebral Palsy

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Cerebral Palsy Support

 

 

 

 


 

Tammy

I have been able to lead a relatively active, high-functioning life considering the fact that I have a severe form of cerebral palsy.

Don Renaud

The reason you’re watching this video is likely because your child or the child of a loved one has been recently diagnosed with cerebral palsy and you’re wondering why after a healthy pregnancy or a well-managed pregnancy the discharge from the hospital has left you in a situation with a profoundly disabled child.

Tammy

It is a roller-coaster for parents. It’s a very intense time. A variety of emotions. You’re dealing with grief, anger, frustration, sadness, a whole range of emotions and each parent goes through those emotions differently but this is a normal thing.

Don Renaud

The damage to the developing brain effectively stops a lot of that development at an early phase. Damage to the developing brain can occur for a number of reasons, many of those reasons have to do with lack of oxygen, lack of blood supply, in and around the time the baby is born. To some extent you need to understand that there is often some damage control that goes on after there has been a traumatic delivery. You may well have heard explanations such as there has been an unfortunate delivery, it was a difficult birth, there were complications, everybody did the best they could. That sort of language is risk management language and it doesn’t give you the explanation you’re entitled to. This risk management exercise often times should be a red flag for those who have a child who has suffered, perhaps suffers from some sort of neuro-natal seizures or other difficulties, cerebral palsy. They should be red flags warranting an investigation to see what really took place.

Tammy

I always recommend to parents that if they for any reason feel that the circumstances surrounding the birth of their child, that there were some issues there, they should seek a lawyer like Don’s advice, to see whether something needs to be done in that area because you need to start preparing for your child’s future financially and that otherwise to ensure that they have the best life possible.

Don Renaud

People are unable on their own to acquire the necessary information from hospitals generally. Hospitals go into something of a lock-down mode, risk management mode, after there has been a traumatic delivery. It is essential that litigation be brought forward in these sorts of cases as a patient safety advocate to see to it that changes are made that prevent these sorts of situations from occurring.

Tammy

Don’t be afraid to ask questions. Seek out the knowledge you need and keep asking questions until they get answered and if you need help with that seek the advice from place like the Cerebral Palsy Association of BC because they will help you and guide you through whatever needs to be done.

Don Renaud

Parents do have options other than what’s offered to them by hospitals and health professionals following a traumatic event or diagnosis of cerebral palsy. Options that enable them to get answers. The law enables counsel to be involved, to investigate thoroughly what took place. The law enables people to access their medical records so that there’s a complete explanation as to what took place. The law enables people to ensure that evidence is preserved and not lost. If it turns out that people have not been doing their jobs properly and that’s what’s led to a tragedy then the courts can be engaged to ensure that compensation is paid out so that injured infants and their families can enjoy a better quality of life than they would be able to without an appropriate assessment of damages.

Tammy

When parents come in, I strongly urge them to start taking action as soon as possible. This I also suggest will ease their fears and doubts and their discomforts. It will give them, it will empower them.

Don Renaud

It is incumbent upon parents who have a child with cerebral palsy or some similar developmental disability to investigate thoroughly the circumstances surrounding the cause of the disability and the timing of the disability. It is essential that it be done through a counsel’s office. It’s the only place where such an investigation can take place. It won’t take place through the hospitals and it won’t take place necessarily through the health professionals without counsel being involved. If this does sound like your situation, if you do have a child with cerebral palsy, you should very much look into the circumstances because there could be compensation there that would be life-changing for your child and for yourself.

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